Monday, August 31, 2020
'What Is Periodic Paralysis? A Disease Like No Other' ~ Fourth Anniversary!
This week we celebrate the fourth anniversary of publishing our fourth book, "What Is Periodic Paralysis?: A Disease Like No Other."
I am including some information about it; the Table of Contents and the Preface.
Table of Contents
About A.S.E.A. vi
What Is Periodic Paralysis? 17
What Are The Symptoms Of Periodic Paralysis? 29
What Are The Triggers Of Periodic Paralysis? 43
Relieving The Symptoms Of Periodic Paralysis 53
Handling The Episodes Of Periodic Paralysis 65
Diagnosing Periodic Paralysis 77
Complications Of Periodic Paralysis 91
Prognosis For Periodic Paralysis 121
About the Authors 141
The Preface of a book gives the reader information about how the book came to be, where the idea originated. In the case of this book, my own family and the members of the ‘Periodic Paralysis Network Support, Education and Advocacy Group’ inspired, What Is Periodic Paralysis? A Disease Like No Other.
The members, now over 900 (update) worldwide, share daily their heart-breaking and frustrating experiences. They relate frightening symptoms, years of painful and costly testing, a lack of being believed and abuse by doctors, denial of diagnoses and denial of proper treatment. These courageous and very ill people are under-recognized; under-diagnosed, misdiagnosed, misunderstood and mistreated by the medical professionals with whom they must deal and depend upon for their care. But to add insult to injury, this same treatment is also received from family members and friends who also tend to disbelieve the existence of the rare medical condition, Periodic Paralysis.
This booklet has been designed and written to share with family members, friends, teachers, coworkers and others who should know about and may want to know, the truth about this cruel disease.
For these reasons this booklet answering the question: “What is Periodic Paralysis?” has been created and written, by the PPN. The information used to describe and explain this disorder is referenced and can be found at the Periodic Paralysis Network, Inc. Website, Blog Articles, Discussion Groups and Books, to include: Living With Periodic Paralysis: The Mystery Unraveled, The Periodic Paralysis Guide And Workbook: Be All You Can Be Naturally, and A Bill Of Rights For Periodic Paralysis Patients.
It can be purchased from our PPNI Website Bookstore: