This week is the 4th anniversary of the release of our book "A Bill Of Rights For Periodic Paralysis Patients." This is an important book to add to your collection if you do not already have it. Most of us are under recognized, under diagnosed, misdiagnosed, misunderstood and mistreated by the medical professionals with whom we must deal and depend upon for our care. This book helps to empower you in these dealings by allowing you to know your rights in order to get correctly diagnosed and to stay safe in receiving the appropriate care. These rights include general rights; diagnostic rights; the right to proper treatment in the laboratory, by doctors and in the ER; the right to research and awareness and issues related to insurance rights. These have been and are being violated in many cases.
Many of our members carry this book with them to all of their medical appointments!!
Link to purchase book:
Below is more information about the book including the Contents, Preface and Introduction.
"A Bill Of Rights For Periodic Paralysis Patients"
Susan Q. Knittle-Hunter