(This may or may not be applicable at this time in dealing with Covid-19.)
I wrote this for a parent awhile back...I
have meant to post it as a Blog Article, but have never quite finished it
before...I hope this can be helpful.
IEP (Individualized Education Plan) or 504
Plan for Periodic Paralysis at School
Each plan is individualized to your
child's needs, accommodations and restrictions. The biggest difference in them
is how it is funded and who will be in charge of the plan.
The best place to start is to have a copy
of the information about your child’s form of Periodic Paralysis and how it
affects him or her. No one will know what it is or be able to understand it
without some background information.
Next, you will need to come up with a list
of the needs, accommodations and restrictions, etc that are necessary for your
child. You can do this with your doctor or come up with them and then ask the
doctor to put them on his/her letterhead for you. The school will have a better
time believing and following through this way. This should include the issues
related to his heart, breathing, blood pressure, cognitive issues, muscle
weakness, and/or paralysis as the potassium shifts.
How to recognize an episode? What to do in
an emergency? Teachers and nurses should be trained to recognize signs of an
episode and know what to do.
Triggers and how/what to avoid? If any
type of exercise causes an episode, then he or she should not have PE, or can
he do some simple things like walking, but not running or swimming?
Food restrictions, or does he or she need
to eat and or drink something every few hours?
Does he or she need more time to get from
class to class? Does he or she need help to get from class to class? Should he
or she have a friend with him at all times in case he or she goes into an
episode? Elevator rather than walking up and down stairs? Can he or she walk from class
to class but not out to the football field?
Due to the time length of episodes or
abortive attacks, does he or she require more time to complete assignments? Or
does he or she need homeschooling/instruction from time to time? Do the
district days of absences allowed need to be changed? Are days added for him?
Does he or she need adaptations such as
using a computer rather than writing with a pencil or pen or doing his or her
work orally or verbally?
Can he or she carry his or her books from
class to class? Too many books at a time? Can he visit his or her locker more
often or leave books and supplies in the classroom with the teacher?
Does he or she need a special chair or
wheelchair at times in which he or she can recline due to weak trunk muscles?
Does speech/talking in the classroom need
to be limited to short periods of time due to weak mouth and throat muscles?
Eyes/eyelids may become too weak to read,
etc. Can lectures be recorded or can a friend share notes?
Another critical issue to consider is
whether the child's symptoms may require him or her to remain at home
permanently using homeschooling, attending school remotely or possibly a
combination of the two.
The following are example pages from the book:
What is Periodic Paralysis? May be purchased at Amazon:
https://www.amazon.com/gp/product/1536851736/ref=dbs_a_def_rwt_hsch_vapi_tpbk_p1_i1
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