Living with Periodic Paralysis: The Blog

This blog was created and designed to educate the world about Periodic Paralysis a rare, inherited, hard to diagnose, debilitating and cruel mineral metabolic disorder. I have two variants of this condition and my life is filled with constant challenges as I attempt to manage my symptoms to stay alive. My husband and I are co-founders of the Periodic Paralysis Network, Inc. This blog is an extension of our educational and support network at www.periodicparalysisnetwork.com .

Sunday, February 7, 2021

Providing HOPE for Ten Years!!

Today is the 10th anniversary of Periodic Paralysis World Awareness Day. We chose this date because February 7th 2011 is the day I got my Andersen-Tawil Syndrome diagnosis, after over 50 years of symptoms and searching for answers. We then created our Periodic Paralysis Network Forum!!

https://livingwithperiodicparalysis.blogspot.com/2020/07/providing-awareness-of-periodic.html

1 comment:

danielbentleySeptember 3, 2021 at 10:25 PM
This blog is really helpful regarding all educational knowledge I earned. It covered a great area of subject which can assist a lot of needy people. Everything mentioned here is clear and very useful.Varon
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Serene Forest

Sunday, February 7, 2021

Providing HOPE for Ten Years!!

1 comment: