Rare Disease Day February 28, 2017

Best Way to Share Awareness of Periodic Paralysis With Others

Hello All,

Yesterday was Periodic Paralysis World Awareness Day. One of the best ways we can make people and doctors aware of the various forms of Periodic Paralysis is to share our latest book with them. I wrote it for this very reason. The first two books were written to help you understand PP and manage your symptoms...to "be the best you can be" and to be able to get a diagnosis. The 'Bill of Rights' book is to help to empower you as you deal with the medical professionals in your life...to know your rights as they try to take them away from you or intimidate you. The fourth and final book "What Is Periodic Paralysis?: A Book Like No Other" was written to share with all of those people in your life who need to know about and understand PP and how it affects you. It was designed to be personalized by you...there are places for you to fill in your own information if you want to share it...how it affects you personally (This is also the way the Workbook was designed).

"What Is Periodic Paralysis?: A Book Like No Other" can be purchased at CreateSpace:
 https://www.createspace.com/5809100

or

Amazon.com:
https://www.amazon.com/Susan-Q-Knittle-Hunter/e/B00HVEBSSQ/ref=dp_byline_cont_pop_book_1

Proceeds from the book...a few dollars each...goes back into our organization....to help run our organization and to purchase books for those who cannot afford them or passing them along to doctors, etc...for awareness and education.




Until Later....

Periodic Paralysis World Awareness Day 2017

Periodic Paralysis World Awareness Day 2017

PPN Sixth Anniversary of Providing HOPE!!!!

Today is the Sixth Anniversary of providing HOPE to those with Periodic Paralysis through our Periodic Paralysis Network. It is also 'Periodic Paralysis World Awareness Day'... Six years ago today I (Susan Q. Knittle-Hunter, PPN Managing Director) got my Andersen-Tawil Diagnosis after nearly being killed by my doctors. It took me over 50 years...so a day of celebration!!!!

The following is a list of our services and features which have been developed for providing HOPE through AWARENESS, SUPPORT, EDUCATION and ADVOCACY, using all natural methods:

PPN Website: www.periodicparalysisnetwork.com

PPN Books:

"Living With Periodic Paralysis: The Mystery Unraveled"

https://www.createspace.com/4111713

"The Periodic Paralysis Guide And Workbook: Be The Best You Can Be Naturally"

https://www.createspace.com/4326356

Video about this Guide and Workbook: https://www.facebook.com/sqkhunter/videos/10153659957417014/

"A Bill Of Rights For Periodic Paralysis Patients"

https://www.createspace.com/5705192

"What Is Periodic Paralysis?: A Disease Like No Other"

https://www.createspace.com/5809100

Our books are also found on

Amazon.com:

https://www.amazon.com/Susan-Q-Knittle-Hunter/e/B00HVEBSSQ/ref=dp_byline_cont_pop_book_1

and

our PPN website:

http://www.periodicparalysisnetwork.com/books.htm

PPN Blog: http://livingwithperiodicparalysis.blogspot.com/

PPN Book Discussion Group:

https://www.facebook.com/groups/periodicparalysisnetwork/

PPN Genealogy Discussion Group:

https://www.facebook.com/groups/580168915344191/

PPNI Genetics Discussion and Research Group:

https://www.facebook.com/groups/1574048096186578/

The PPN Learning Center and Workshop:

https://www.facebook.com/groups/1416848568618404/

Periodic Paralysis Caregivers:

https://www.facebook.com/groups/366386850151623/

PP and Co-existing Conditions:

https://www.facebook.com/groups/145866829183840/

PP Buddies (Support when in an emergency)

https://www.facebook.com/groups/173361553092830/

PPN Website Facebook Page:

https://www.facebook.com/PeriodicParalysisNetwork

PPN Author's Page:

https://www.facebook.com/SusanQKnittleHunterauthor

Email: periodicparalysisnetwork@gmail.com

GoFundMe: http://www.gofundme.com/ftnr50

Bravelets: https://www.bravelets.com/bravepage/alone-in-the-dark-periodic-paralysis

Video about Periodic Paralysis: https://www.youtube.com/watch?v=YSRVOkdFRQc

Twitter: https://twitter.com/NetPeriodic

Periodic Paralysis World Awareness Day Page:

https://www.facebook.com/PPAwarenessDay/

Please check out our PPN Members World Map:

http://www.multiplottr.com/?map_id=55083

Thank you all for your support

Calvin Hunter and Susan Q. Knittle-Hunter

Co-Founders, Co-Creators, Co-Managers

Periodic Paralysis Network, Inc.

Sequim, Washington U.S.A.

All rights reserved. copyright © 2017 Periodic Paralysis Network