Hello All,
Yesterday was Periodic Paralysis World Awareness Day. One of the best ways we can make people and doctors aware of the various forms of Periodic Paralysis is to share our latest book with them. I wrote it for this very reason. The first two books were written to help you understand PP and manage your symptoms...to "be the best you can be" and to be able to get a diagnosis. The 'Bill of Rights' book is to help to empower you as you deal with the medical professionals in your life...to know your rights as they try to take them away from you or intimidate you. The fourth and final book "What Is Periodic Paralysis?: A Book Like No Other" was written to share with all of those people in your life who need to know about and understand PP and how it affects you. It was designed to be personalized by you...there are places for you to fill in your own information if you want to share it...how it affects you personally (This is also the way the Workbook was designed).
"What Is Periodic Paralysis?: A Book Like No Other" can be purchased at CreateSpace:
https://www.createspace.com/5809100
or
Amazon.com:
https://www.amazon.com/Susan-Q-Knittle-Hunter/e/B00HVEBSSQ/ref=dp_byline_cont_pop_book_1
Proceeds from the book...a few dollars each...goes back into our organization....to help run our organization and to purchase books for those who cannot afford them or passing them along to doctors, etc...for awareness and education.
Until Later....
This blog was created and designed to educate the world about Periodic Paralysis a rare, inherited, hard to diagnose, debilitating and cruel mineral metabolic disorder. I have two variants of this condition and my life is filled with constant challenges as I attempt to manage my symptoms to stay alive. My husband and I are co-founders of the Periodic Paralysis Network, Inc. This blog is an extension of our educational and support network at www.periodicparalysisnetworkinc.com .
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