We at the Periodic Paralysis Network are proud and excited to announce that our newest book about Periodic Paralysis, "What Is Periodic Paralysis?: A Disease like No Other" is now ready to purchase!!! This is our first book written for those who do not have Periodic Paralysis.
"This book has been designed and written to share with family members, friends, teachers, coworkers, neighbors, doctors and others who should know about and may want to know, the truth about this cruel disease. This fourth book, just as the other three, was written because there is a need to educate others and bring awareness of Periodic Paralysis to the world. There was and is a great need for a book that can explain the important aspects of Periodic Paralysis in simple terms and how they relate personally to and for each individual with this disabling condition. Some of the issues that are covered include but are not limited to, what Periodic Paralysis is and what it is not, how it is diagnosed, how it is treated, what the symptoms are, what causes the symptoms, what does an episode of paralysis look like, what is the prognosis and what kind of complications can occur."
Susan Q. Knittle-Hunter
What Is Periodic Paralysis?
A Disease Like No Other
From
The
Periodic Paralysis Network A.S.E.A. Series
Awareness
~ Support ~ Education ~ Advocacy
Volume Two
Volume Two
Susan Q. Knittle-Hunter
Table of Contents
About A.S.E.A.
|
vi
|
|
Preface
|
viii
|
|
Acknowledgements
|
ix
|
|
Introduction
|
13
|
|
What Is Periodic Paralysis?
|
17
|
|
What Are The Symptoms Of Periodic Paralysis?
|
29
|
|
What Are The Triggers Of Periodic Paralysis?
|
43
|
|
Relieving The Symptoms Of Periodic Paralysis
|
53
|
|
Handling The Episodes Of Periodic Paralysis
|
65
|
|
Diagnosing Periodic Paralysis
|
77
|
|
Complications Of Periodic Paralysis
|
91
|
|
Prognosis For Periodic Paralysis
|
121
|
|
Conclusion
|
129
|
|
Resources
|
140
|
|
About the Authors
|
141
|
Preface
The Preface of a book gives the reader information
about how the book came to be, where the idea originated. In the case of this
booklet, my own family and the members of the ‘Periodic Paralysis
Network Support, Education and Advocacy Group’ inspired, What Is
Periodic Paralysis? A Disease Like No Other.
The members, now over 550 worldwide, share daily
their heart-breaking and frustrating experiences. They relate frightening
symptoms, years of painful and costly testing, a lack of being believed and
abuse by doctors, denial of diagnoses and denial of proper treatment. These
courageous and very ill people are under recognized; under diagnosed,
misdiagnosed, misunderstood and mistreated by the medical professionals with
whom they must deal and depend upon for their care. But to add insult to injury,
this same treatment is also received from family members and friends who also
tend to disbelieve the existence of the rare medical condition, Periodic
Paralysis.
For these reasons this booklet answering the
question: “What is Periodic Paralysis?” has been created and written, by the
PPN. The information used to describe and explain this disorder is referenced
and can be found at the Periodic Paralysis Network, Inc. Website, Blog
Articles, Discussion Groups and Books, to include: Living With Periodic
Paralysis: The Mystery Unraveled, The
Periodic Paralysis Guide And Workbook: Be All You Can Be Naturally and A Bill Of Rights For Periodic Paralysis Patients.
It can be purchased on CreateSpace and Amazon:
"What Is Periodic Paralysis?: A Disease Like No Other"
No comments:
Post a Comment