This blog was created and designed to educate the world about Periodic Paralysis a rare, inherited, hard to diagnose, debilitating and cruel mineral metabolic disorder. I have two variants of this condition and my life is filled with constant challenges as I attempt to manage my symptoms to stay alive. My husband and I are co-founders of the Periodic Paralysis Network, Inc. This blog is an extension of our educational and support network at www.periodicparalysisnetworkinc.com .
Wednesday, May 25, 2016
Over 525 Members!!
This is good news and bad news!!! We now have over 525 members!! The bad news is that so many people are suffering from this cruel disease. The good news is that we are able to help and provide HOPE by sharing support, education and advocacy.
Thank you all for your support!!!
The following are the services and features of our PPN Forum:
PPN Website: www.periodicparalysisnetwork.com
PPN Support, Education and Advocacy Group:
https://www.facebook.com/groups/periodicparalysisnetworksupportgroup/
PPN Books:
"Living With Periodic Paralysis: The Mystery Unraveled"
"The Periodic Paralysis Guide And Workbook: Be The Best You Can Be Naturally"
"A Bill Of Rights For Periodic Paralysis Patients"
(All found on Amazon and on our website http://www.periodicparalysisnetwork.com/books.htm)
PPN Blog: http://livingwithperiodicparalysis.blogspot.com/
PPN Book Discussion Group:
https://www.facebook.com/groups/periodicparalysisnetwork/
PPN Genealogy Discussion Group:
https://www.facebook.com/groups/580168915344191/
PPNI Genetics Discussion and Research Group.
https://www.facebook.com/groups/1574048096186578/
The PPN Learning Center and Workshop:
https://www.facebook.com/groups/1416848568618404/
PPN Website Facebook Page:
https://www.facebook.com/PeriodicParalysisNetwork
PPN Author's Page:
https://www.facebook.com/SusanQKnittleHunterauthor
Email: periodicparalysisnetwork@gmail.com
GoFundMe: http://www.gofundme.com/ftnr50
Bravelets: https://www.bravelets.com/…/alone-in-the-dark-periodic-para…
Video about Periodic Paralysis: https://www.youtube.com/watch?v=YSRVOkdFRQc
Twitter: https://twitter.com/NetPeriodic
Periodic Paralysis World Awareness Day Page:
https://www.facebook.com/PPAwarenessDay/
Please check out our PPN Members World Map:
http://www.multiplottr.com/?map_id=55083
Thank you all for your support........
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