Living with Periodic Paralysis: The Blog

This blog was created and designed to educate the world about Periodic Paralysis a rare, inherited, hard to diagnose, debilitating and cruel mineral metabolic disorder. I have two variants of this condition and my life is filled with constant challenges as I attempt to manage my symptoms to stay alive. My husband and I are co-founders of the Periodic Paralysis Network, Inc. This blog is an extension of our educational and support network at www.periodicparalysisnetworkinc.com .

Friday, February 6, 2015

Happy Periodic Paralysis Awareness Day and Happy Fourth Anniversary for PPNI!!!!

Hello All,

Happy 4th Anniversary to the Periodic Paralysis Network, Inc.
and
Happy 2nd Periodic Paralysis Awareness Day!!

Four years ago, today, I received my diagnosis for Andersen-Tawil Syndrome. It is the day the Periodic Paralysis Network was born. Not finding the kind of help or support I needed, Calvin and I created a small website and began to share what we had discovered and attempted to provide the help, support, education and advocacy, which I could not find anywhere else.

The Periodic Paralysis Network has grown into a huge forum now with nearly 350 members!! We have the following features:

PPN Website: www.periodicparalysisnetwork.com

PPN Blog: http://livingwithperiodicparalysis.blogspot.com/

PPN Book Discussion Group:
https://www.facebook.com/groups/periodicparalysisnetwork/

PPN Books: http://www.periodicparalysisnetwork.com/books.htm
"Living With Periodic Paralysis: The Mystery Unraveled"
"The Periodic Paralysis Guide And Workbook: Be The Best You Can Be Naturally"