We are excited and proud to announce our new book "The Periodic Paralysis Guide And Workbook: Be The Best You Can Be Naturally" is now available in paperback on Create Space and Amazon.
The Periodic Paralysis Guide And Workbook:
Be The Best You Can Be Naturally
Be The Best You Can Be Naturally
Susan Quentine Knittle-Hunter
&
Calvin Hunter
Table Of
Contents
Acknowledgments
|
viii
|
|
Preface
|
ix
|
|
Introduction
|
xi
|
|
Section I: The Facts
|
||
Getting
Started
|
1
|
|
One
|
Periodic Paralysis: The Basic Facts
|
5
|
Two
|
The Periodic Paralyses: More Detail
|
9
|
Three
|
An Ion Channelopathy: A Mineral Metabolic Disorder
|
17
|
Four
|
Possible Complications: The Most Common
|
19
|
Five
|
More Complications: Understanding The Complexity
|
35
|
Section II:
The Plan
|
||
Six
|
The Plan: The Outline
|
45
|
Seven
|
Educate Yourself: Discussion
Groups, Websites, Internet and Books
|
49
|
Eight
|
Describe Your Episodes: Paralysis Accompanying Symptoms
|
53
|
Nine
|
Monitor Your Vitals: Tools For The Job
|
59
|
Ten
|
Identify And Eliminate Triggers: Avoid-Chart-Journal-Monitor
|
71
|
Eleven
|
Relieve Your Symptoms: Changing Lives Naturally
|
87
|
Twelve
|
Find A Doctor Who Cares: Not Easy But Possible
|
109
|
Thirteen
|
Get A Diagnosis: Hit Them With The Facts
|
115
|
Fourteen
|
Get Proper Medical Treatment: Assemble And Direct
The Team
|
127
|
Fifteen
|
Direct The Paramedics And EMT’s: No IV’s Please
|
131
|
Sixteen
|
Direct The ER And Hospital Staff: Avoid The
Pitfalls
|
135
|
Seventeen
|
Prognosis:
The Best You Can Be
|
139
|
Eighteen
|
The
Conclusion: Hope
|
141
|
Section III: The Journal
|
||
Nineteen
|
The Personal Periodic Paralysis Journal: Put It
Together
|
145
|
Index
|
191
|
Preface
A
preface for a book is written to explain what the book is about, why the author
wrote the book, why it is important, where the idea for the book originated,
how it came to be and how long it took to write. With this in mind, I will
begin by explaining that this book is about a very rare, hereditary, and
debilitating mineral metabolic disorder, with which I have been diagnosed,
called Periodic Paralysis (PP). It is the second book written specifically
about this relatively unknown condition. My husband Calvin and I previously wrote,
living with Periodic Paralysis: The Mystery Unraveled, based on our own
experiences and research. In it we tell our story, provide information about
Periodic Paralysis not found anywhere else, and deliver ideas about how to
better manage symptoms and discuss the psychological and social aspects of
living with the condition.
The idea for a second book came from the need, of a user-friendly workbook and guide to assist individuals with this condition to be the best they can be by using the natural and common sense methods as outlined in the first book. This is important because very little information exists about how to treat the symptoms of Periodic Paralysis, other than the use of off-label drugs, which can be harmful to many individuals or are not tolerated well. The idea for this book originated from our own experiences, study and experimentation and the need of others who suffer from this condition. This book actually took more than four years to compile and write.
We
know this need exists because Calvin and I interact daily with over 300 very
ill individuals, from around the world, who are members in our Periodic
Paralysis Network Support, Education and Advocacy Group and others who contact
us by email through our PPN Website, our PPN Facebook Pages, our PPN Blog or
through searching for us after reading our first book. These individuals, their
families and caregivers, and several new members each week, need assistance and
we spend our days providing support, education, advocacy, validation and hope
in an otherwise hopeless world for them.
They
are attempting to find the names of specialists who can help them and diagnose
them and seeking a simple pill or medication to stop the paralysis and other
cruel ‘quality of life stealing’ symptoms plaguing them daily. The truth is
there are very few “specialists” or doctors in the world who know about or
fully understand all aspects of the many forms of Periodic Paralysis. There is
no simple pill or drug; no magic cure for Periodic Paralysis. Most doctors do
not recognize Periodic Paralysis and genetic testing is nearly non-existent for
most forms and therefore they will not diagnose their patients or will diagnose
them with somatic disorders. However, when these individuals come to our forum,
we are able to provide them with hope and methods to assist them to find a
doctor who cares and to get a diagnosis based on their symptoms. We also
provide methods to assist them to relieve their symptoms in natural ways. We
help them to improve their lives with the information and methods we have
learned and I practice everyday.
Through this new guide, workbook and journal, we have included all of these ideas and the tools to be successful. We want to empower individuals with Periodic Paralysis by providing a hands-on, user-friendly implement in one handbook with a series of plans made up life changing goals and objectives. These are expanded from the first book as well as the simple and easy to follow instructions to carry them out. The Periodic Paralysis Guide And Workbook: Be The Best You Can Be Naturally, offers HOPE to everyone with Periodic Paralysis, in the same manner as our book, living with Periodic Paralysis: The Mystery Unraveled.
In
conclusion, we are aware that it is not an easy path in life for individuals
with Periodic Paralysis. We know we must constantly balance on an ever-changing
tightrope. We are not able to provide anyone who has
Periodic Paralysis with a cure or a magic drug. We cannot diagnose anyone or
suggest a specialist who can help. However, we do know that through this hands
on and user-friendly guide and workbook, we can give others hope through the
knowledge we share, the ideas we pass along in all areas of dealing with and
managing their symptoms and with validation and support. We wrote this second
book about Periodic Paralysis, to give hope to others who suffer with this
condition and to guide them to be the best they can be naturally.
Amazon:
https://www.amazon.com/Susan-Q-Knittle-Hunter/e/B00HVEBSSQ/ref=dp_byline_cont_pop_book_1
CreateSpace:
https://www.createspace.com/4326356?ref=1147694&utm_id=6026
Until later...
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