"Periodic Paralysis is a disease unlike any other. It is in a category all its own and needs to be treated in non-conventional ways." (Quote from one of the doctors who diagnosed me.)
As I have been busy building this blog, I have been trying to decide the best way to describe just what Periodic Paralysis is to our audience. Rather than re-inventing the wheel, I decided to post an article I wrote about it on PublishUs. It is a good overview of my story and Periodic Paralysis. Then I hope to break down the components and write about a different aspect of it each day. Please feel free to ask questions and that may help to guide me to a topic for research and for a future post.
They hooked me up with a recording oximeter. It was discovered that my oxygen saturation levels were dropping dangerously low during my episodes of paralysis and it was apparent that they were low every time I exerted myself in any way. The technician took the information to my PCP and she had no choice but to sign a referral for me to get oxygen. At that point, we began to look for another PCP and decided to change insurance companies to avoid the need for referrals.
Normokalemic Periodic Paralysis (NormoPP)
Thyrotoxic Periodic Paralysis (TPP)
High blood pressure
Low blood pressure
One who suffers with Andersen-Tawil Syndrome may experience a variety of symptoms in relationship to their ATS paralytic episodes including but not limited to any of the symptoms from above depending on whether the attack is hypokalemic, hyperkalemic or normokalemic. They also have long QT interval heartbeats, a life threatening arrhythmia, which is a marker for ATS. Ventricular arrhythmia is common as is fainting.
Join Periodic Paralysis social groups: Being part of a Periodic Paralysis community is vital. I have discovered I am not alone. I receive encouragement, support, sympathy and empathy. I gain information and knowledge from others who live with the same enemy daily. I ask questions and share ideas.
"Living With Periodic Paralysis: The Mystery Unraveled"
"The Periodic Paralysis Guide And Workbook: Be The Best You Can Be Naturally"
"A Bill Of Rights For Periodic Paralysis Patients"
"What Is Periodic Paralysis?: A Disease Like No Other"
They can be purchased at:
If you wish to know more about Periodic Paralysis, you may visit the Periodic Paralysis Network.