This blog is designed to educate the world about Periodic Paralysis a rare, inherited, hard to diagnose, debilitating and cruel metabolic disorder. I have a variant of this condition and my life is filled with constant challenges as I attempt to manage my symptoms to stay alive. My husband and I are co-founders of the Periodic Paralysis Network, Inc. This blog is an extension of our educational and support network at www.periodicparalysisnetwork.com .
Thursday, November 28, 2013
Periodic Paralysis and Balance November 28, 2013
Thanksgiving to our readers in the USA!!!
About two weeks ago, physically, I could not even get
out of my recliner and I was in a brain fog, and more. I felt miserable. I
mentioned it in some of my previous blogs. I have had varying degrees of this
for many, long months and it was getting worse.
I had to evaluate what the trigger was so I could stop it or avoid it.
I just could not face one more day of feeling like I was dying. I studied my
diet, which is organic and free of additives, pesticides and pH balanced. I
monitored my vitals and my potassium and glucose levels, which were normal. I
decided the only other thing out of the ordinary was my supplements. I had been
taking them for nearly three years. They are pure and free of gluten, sugar, etc
with no fillers. I decided to experiment, however, and stopped taking them.
Since that day...I have been able to get out of my recliner and the fog
has lifted!!! My world has color again!! No more shades of gray!! I have more
energy. Calvin has been shocked at the difference and continues to caution me
to not do too much.
I have been able to prepare an entire Thanksgiving
dinner!! Each day I made one thing and froze it or packaged it until today. I
will be putting my own turkey in the oven in a little while! My daughter and
son-in-law arrived last night and I was able to serve them gluten free and low
sugar pumpkin pie that I made, as well as, to be able to visit with them
without going into paralysis.
I believe that the problem was taking supplements that I did not need
any longer. It was throwing my body out of balance. I may need them again in
the future, but not now. As my symptoms wax and wane in the future, I will need
to evaluate why, but I know now that I should not put anything in my body I do not
need. Those of us with Periodic Paralysis must walk that fine line...We must
“walk the tightrope”
Periodic Paralysis is an ion channelopathy. Ion channelopathies are mineral
metabolic disorders. Periodic Paralysis is a 4th class mineral
metabolic disorder. As such, it appears that anything may affect the balance…we
must continually evaluate and re-evaluate each thing we are putting into out