This blog is designed to educate the world about Periodic Paralysis a rare, inherited, hard to diagnose, debilitating and cruel metabolic disorder. I have a variant of this condition and my life is filled with constant challenges as I attempt to manage my symptoms to stay alive. My husband and I are co-founders of the Periodic Paralysis Network, Inc. This blog is an extension of our educational and support network at www.periodicparalysisnetwork.com .
Our Mission Statement:The Periodic Paralysis Network exists to assist individuals who have Periodic Paralysis with support, education and advocacy and by providing a hands-on approach to understanding the disease, getting a proper diagnosis, managing the symptoms in all natural ways, and assisting their caregivers and family members.
Our Website, other discussion groups/boards, books and activities available through PPN:
The following are the services and features of our PPN forum:
PPN Blog: We have over 150 blog articles written about all aspects of Periodic Paralysis. The Blog was created to provide information to all of our members, as well as, family members, friends and medical professionals who want to know more about Periodic Paralysis. http://livingwithperiodicparalysis.blogspot.com/
PPN Website Facebook Page: Our PPN Facebook Page is designed to share more general information and articles related to Periodic Paralysis, Chronic Illness and Invisible Illness. It is also designed to share with family members and friends to provide them with a better understanding about PP, chronic and invisible illness. https://www.facebook.com/PeriodicParalysisNetwork
Periodic Paralysis World Awareness Day Page: This page was created to bring awareness to the world about Periodic Paralysis. We have declared and observe 'Periodic Paralysis World Awareness Day' February 7th each year! https://www.facebook.com/PPAwarenessDay/