Today’s blog has been written by one of our members, a mother, who is trying to get a diagnosis and proper treatment for her daughter who is suffering greatly with symptoms much like Periodic Paralysis. Her frustration is evident in this open letter to the doctors she will see in the future.
Many of us with PP have dealt with and are dealing with this frustration.
Thank you Carolanne for sharing with us.
Dear Unknown Doctor:
My daughter has been sick. We know she has been sick and we don't know what it is. This is what we want from you:
(5) Most importantly, LISTEN. We are spending thousands upon thousands of dollars to help our loved one. This sickness/illness/disease/condition has taken over our life. Listen to what we are saying and if you cannot empathize, please sympathize.