Wednesday, September 6, 2017
RARE Champion of Hope Award
Yesterday I received a surprise in the mail. I received a letter and small gift from Global Genes, a leading global rare disease advocacy organization. I had been nominated for being deserving of recognition of extraordinary efforts in rare disease (Periodic Paralysis)!! I did not win the RARE Champion of Hope award but I was recognized with a token (a book mark) as a 2017 nominee.
I want to thank whoever it was that nominated me. Thank you so much. I was very surprised and humbled by this.