A Reply to a ‘Conversion Disorder’ Diagnosis by Guest Blogger Maureen

Hello All,

Maureen, one of our PPN Support Group members, has written another great article. This one is about 'conversion disorder' a term used very loosely and given to many of us by doctors who know nothing about Periodic Paralysis.

“I'm considering asking the next doctor who even hints or insinuates anything about 'conversion disorder' (or anything similar to this so-called diagnosis) how they are able to retain thoroughly knowing the over 7,000 KNOWN rare diseases, let alone the KNOWN mutations of just ionic channelopathy disorder mutations and all the complex potential mixes of these that are not even comprehended by the most advanced researchers who focus on trying to learn about these as their life work, and congratulate them on their understanding of not only knowing all of these and understanding them, but also inferring that they know and understand about the recently discovered 2nd language of the DNA that is a long way from being thoroughly and correctly deciphered by experts in this field that will affect medical knowledge and diagnosis...so that they think themselves to be expert enough to discard all the information that is known and published about these (which we know isn't complete because the more that is learned, the more is realized how much ISN’T known) so that they can rule ALL these and more out and confidently think they are competently and accurately diagnosing a conversion disorder at the risk of harm coming to their patient who will not receive appropriate and possibly life saving and for sure life-altering treatment if they 'diagnose’ and 'label' the person as having a conversion disorder.”

Maureen....I wish you could hear my hands clapping in applause as I squeal in delight!! Well said as always!!!! Thanks so much!!!!