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Sunday, November 11, 2018

Happy Fifth Anniversary to Our PPN Blog!!






Happy Fifth Anniversary to Our PPN Blog!!

            It has been five years since I created and wrote my first article in our Periodic Paralysis Network (PPN) Blog, Living With Periodic Paralysis: The Blog. I decided because our PPN Support Group was open to only those who have PP and their family members, that we needed another format for sharing information about Periodic Paralysis (PP) and for bringing more awareness to this rare, little understood, disabling and cruel medical condition, which is a mineral metabolic disorder.

Since that day, over 150 articles have been written and shared about every aspect of Periodic Paralysis from what it is, to how to manage the symptoms and how to get a diagnosis.

The following was our first Blog article:

Hello All,

Welcome to our new blog!!!! It is our desire to share with the world everything and anything we can about Periodic Paralysis with the hope of educating and supporting others with the condition and educating others who do not have it but would like to know about it, including doctors and medical professionals. I began a blog several years ago and wrote daily for over a year, but it was a closed blog, as is our support group, so only our members could read what I wrote. We have been looking for a way to be able to reach more people with our important information, so decided it was time to create a new blog and open it up to the world!!!! Please feel free to ask questions and share your experiences with us.

We would like to introduce ourselves:

I am Susan Q. Knittle-Hunter and my husband Calvin Hunter. We are passionate about helping others with Periodic Paralysis and sharing information about it. Periodic Paralysis is very rare, hereditary, debilitating, difficult to diagnose, mineral metabolic disorder, also known as an ion channelopathy. I have a form of it and was 62 years old when I was finally diagnosed, 3 (now 8) years ago, after suffering the effects of it nearly my entire life and nearly dying from the wrong diagnoses and incorrect treatments I received.

Calvin Hunter and I are the founders and creators of an on-line independent organization, the Periodic Paralysis Network, a private educational, support and advocacy organization, which is patient-safety-related due to the serious nature and potential life-threatening symptoms and side effects of this condition if it is not treated correctly.  We have a website with a forum containing 3 distinct discussion groups and we have written and published two books, the only two (now 4) books written about Periodic Paralysis...Living With Periodic Paralysis: The Mystery Unraveled, which is an extension of our website and a workbook...The Periodic Paralysis Guide and Workbook: Be The Best You Can Be Naturally. We work towards the improvement of the quality and safety of patients from all over the world with the various forms of Periodic Paralysis. Our focus is on educational resources to build self-reliance and self-empowerment and to prevent possible harm from improper treatment. Our approach to treatment focuses on the self-monitoring of vitals and the management of symptoms through natural methods. We also offer strategies to understanding the disease, getting a proper diagnosis, managing the symptoms, and assisting caregivers and family members. We have members from all over the world, (Iran, Ukraine, Turkey, Denmark, Wales, Netherlands, Canada, Finland, Australia, and more) who are seeking help for themselves, their children and entire families and are unable to find it anywhere. We provide ideas on how to find doctors, get a diagnosis, get the proper help in the ER, how to discover their triggers and much more.

Periodic Paralysis is often misdiagnosed and mistreated, thus causing more damage or possible death to the person with it. There are several types: Hypokalemic Periodic Paralysis (low potassium), Hyperkalemic Periodic Paralysis (high potassium) and the type I have, a variant of Andersen-Tawil Syndrome (ATS), is the most rare and the most serious type. Long QT interval heartbeats can accompany the episodes. On a cellular level, triggered by things such as sleep, exercise, sugar, salt, most medications, stress, cold, heat, anesthesia, adrenaline, IVs, etc., potassium wrongly enters the muscles either temporarily weakening or paralyzing the individual. Episodes can be full body lasting hours or days. Permanent muscle weakness may occur over time. If it affects the breathing muscles it can become terminal. Dangerous heart arrhythmia, heart rate fluctuation, blood pressure fluctuation, choking, breathing difficulties, cardiac arrest and/or respiratory arrest can also accompany the episodes. Due to these complications, it is extremely important to avoid the episodes. There are no known cures, but there are treatments/drugs for some forms, which can be and are successful for some individuals (but the side effects over time can be and are harmful).

The type I have, Andersen-Tawil Syndrome (ATS), however, has no traditional medications, which can alleviate the symptoms, but by avoiding the triggers and by using some natural methods, the number of paralytic episodes can be reduced and the severity of the episodes can be lessened. Due to many wrong diagnoses and improper medications, I am severely disabled in a power wheelchair and on oxygen therapy 24/7. I was having episodes 4 to 5 times a day but now, with the natural methods have been able to reduce the number to about 1 or 2 a month (Now once or twice a year) during my waking hours (sleep is my biggest trigger so I continue to have them every night as I sleep) with less severity and for shorter periods of time. Calvin's tireless research discovered these methods and saved my life.

I earned B.S. degrees in Psychology and Special Education at the University of Utah and spent many years as a teacher and case manager working with children and adults with disabilities. Calvin earned B.S. degrees in Behavioral Science and Psychology at Westminster College and the University of Utah. He also holds a M.Ed. degree in Special Education and M.S. degree in Information Technology from the University of Utah and Capella University. Calvin worked in a variety of fields including teaching, corrections and case management.

We are now retired and enjoy the peace and beauty of the forest in our new home on the Olympic Peninsula in Washington. We live with two spoiled cats and plenty of wildlife. We are presently writing our next books and continue to work daily to help others with PP. In his spare time, Calvin enjoys working with wood and tends our organic garden while I enjoy genealogy research and reading historical romance novels. We have three children and five grandchildren.

Please join us often for a new lesson or story related to Periodic Paralysis. Please feel free to ask questions and share your experiences with us.

If you have Periodic Paralysis or suspect you have it and would like to join us on our education and support group, please use the following link:

For more information please visit our:

Until later....


            Over the past five years we feel that we have been successful in our endeavors to educate the world about Periodic Paralysis.  On the day we posted our first article five years ago, we had less than 150 members. Today we have over 800 members from all over the world! Some of them joined us after finding our Blog.



The following are the titles of our most popular articles followed by the number of views:

Why We Should NOT TAKE DRUGS: Idiosyncratic and Paradoxical Reactions To Drugs
3,188

 

Periodic Paralysis and Metabolic Acidosis

2, 986

 

What is Andersen-Tawil Syndrome?

2, 449

 

Periodic Paralysis and Anesthesia

2,285

 

Conversion Disorder vs Periodic Paralysis

1,875

 

Paramyotonia Congenita: Another Form Of Periodic Paralysis

1,367

 

What is Hypokalemic Periodic Paralysis?

1,285

 

Permanent Muscle Weakness in Periodic Paralysis

1,259

 

Exercise Intolerance

1,102

 

What is Periodic Paralysis?

1,009

 

The Connection Between Mitochondria and Autoimmune Disease in Periodic Paralysis

992

 

Why People With Some Forms of Periodic Paralysis Should Not Use Intravenous Therapy (IVs)

919

 

The following is the List and Links of the PPN Blog Articles

(This begins with the most recent articles and scrolls down to older articles)

What Is Periodic Paralysis? (2) (For Those Who Are Interested And For New Members)

https://livingwithperiodicparalysis.blogspot.com/2018/05/what-is-periodic-paralysis-2-for-those.html

 

Periodic Paralysis IS Life Threatening

https://livingwithperiodicparalysis.blogspot.com/2017/12/periodic-paralysis-is-life-threatening.html

 

How Many People Really Have Andersen-Tawil Syndrome?? More than 100!!

http://livingwithperiodicparalysis.blogspot.com/2017/10/how-many-people-really-have-andersen.html

  

How To Manage Our Periodic Paralysis Symptoms Naturally: Total Balance And Proper Diet

http://livingwithperiodicparalysis.blogspot.com/2017/10/how-to-manage-our-periodic-paralysis.html

 

Periodic Paralysis: Secondary Causes??? http://livingwithperiodicparalysis.blogspot.com/2017/10/periodic-paralysis-secondary-causes.html

 

Balance and Periodic Paralysis http://livingwithperiodicparalysis.blogspot.com/2017/10/balance-and-periodic-paralysis.html

 

Warning About Free Genetic Testing For Periodic Paralysis

http://livingwithperiodicparalysis.blogspot.com/2017/09/warning-about-free-genetic-testing-for.html

 

Hope And Living With Periodic Paralysis, A Chronic Illness

http://livingwithperiodicparalysis.blogspot.com/2017/09/hope-and-living-with-periodic-paralysis.html

 

Now providing HOPE, SUPPORT, EDUCATION and ADVOCACY to over 700 members worldwide!!!

http://livingwithperiodicparalysis.blogspot.com/2017/09/now-providing-hope-support-education.html

 

RARE Champion of Hope Award

http://livingwithperiodicparalysis.blogspot.com/2017/09/rare-champion-of-hope-award.html

 

Providing HOPE, SUPPORT, EDUCATION and ADVOCACY to over 650 members!!

http://livingwithperiodicparalysis.blogspot.com/2017/03/providing-hope-support-education-and.html

 

Rare Disease Day February 28, 2017

http://livingwithperiodicparalysis.blogspot.com/2017/02/rare-disease-day-february-28-2017.html

 

Best Way to Share Awareness of Periodic Paralysis With Others

http://livingwithperiodicparalysis.blogspot.com/2017/02/best-way-to-share-awareness-of-periodic.html

 

Periodic Paralysis World Awareness Day 2017

http://livingwithperiodicparalysis.blogspot.com/2017/02/periodic-paralysis-world-awareness-day.html

 

PPN Sixth Anniversary of Providing HOPE!!!!

http://livingwithperiodicparalysis.blogspot.com/2017/02/ppn-sixth-anniversary-of-providing-hope.html

 

Providing HOPE to over 625 Members Now!!!

http://livingwithperiodicparalysis.blogspot.com/2017/01/providing-hope-to-over-625-members-now.html

 

Bringing Hope To Over 600 Members Now!!

http://livingwithperiodicparalysis.blogspot.com/2016/11/bringing-hope-to-over-600-members-now.html

 

Over 575 Members!!

http://livingwithperiodicparalysis.blogspot.com/2016/09/over-575-members.html Our

 

Newest Book: "What Is Periodic Paralysis?: A Disease Like No Other"

http://livingwithperiodicparalysis.blogspot.com/2016/09/our-newest-book-what-is-periodic.html

 

Congratulations Periodic Paralysis Network!!! Over 50,000 views!!!!!

http://livingwithperiodicparalysis.blogspot.com/2016/07/congratulations-periodic-paralysis.html

 

550 Members!!!

http://livingwithperiodicparalysis.blogspot.com/2016/07/550-members.html

 

Over 525 Members!!

http://livingwithperiodicparalysis.blogspot.com/2016/05/over-525-members.html

 

This is good news and bad news!!! We now have over 500 members!!

http://livingwithperiodicparalysis.blogspot.com/2016/04/this-is-good-news-and-bad-news-we-now.html

 

Rare Disease Day Photo

http://livingwithperiodicparalysis.blogspot.com/2016/03/rare-disease-day-photo.html

 

What is Periodic Paralysis?? For "Rare Disease Day"

http://livingwithperiodicparalysis.blogspot.com/2016/02/v-behaviorurldefaultvmlo.html

 

Happy 5th Anniversary PPN and Periodic Paralysis Awareness Day!!

http://livingwithperiodicparalysis.blogspot.com/2016/02/happy-5th-anniversary-ppn-and-periodic.html

 

Periodic Paralysis Awareness Campaign!!

http://livingwithperiodicparalysis.blogspot.com/2016/02/periodic-paralysis-awareness-campaign.html

475 Members!!! http://livingwithperiodicparalysis.blogspot.com/2016/01/475-members.html

 

Average Number of Paralytic Attacks Per Year?

http://livingwithperiodicparalysis.blogspot.com/2016/01/average-number-of-paralytic-attacks-per.html

 

Normokalemic Periodic Paralysis Update

http://livingwithperiodicparalysis.blogspot.com/2016/01/normokalemic-periodic-paralysis-update.html

 

Periodic Paralysis World Awareness Day February 7, 2016

http://livingwithperiodicparalysis.blogspot.com/2016/01/periodic-paralysis-world-awareness-day.html

 

Periodic Paralysis And Co-existing Medical Conditions

http://livingwithperiodicparalysis.blogspot.com/2016/01/periodic-paralysis-and-co-existing.html

 

450 Members!!!!

http://livingwithperiodicparalysis.blogspot.com/2015/12/450-members.html

 

Happy Second Anniversary For Our PPN Blog!!

http://livingwithperiodicparalysis.blogspot.com/2015/11/happy-second-anniversary-for-our-ppn.html

 

Permanent Muscle Weakness (Revised)

http://livingwithperiodicparalysis.blogspot.com/2015/10/permanent-muscle-weakness-revised.html

 

Invisible Illness Week!! Periodic Paralysis Awareness!!

http://livingwithperiodicparalysis.blogspot.com/2015/09/invisible-illness-week-periodic.html

 

Our Latest Book: "A Bill Of Rights For Periodic Paralysis Patients" the first in our A.S.E.A.Series

http://livingwithperiodicparalysis.blogspot.com/2015/09/our-latest-book-bill-of-rights-for.html

 

"New" Drug For Periodic Paralysis $163.80 For One 50mg Tablet!! (Revision)

http://livingwithperiodicparalysis.blogspot.com/2015/09/new-drug-for-periodic-paralysis-16380_17.html

 

Over 425 Members Now!!!

http://livingwithperiodicparalysis.blogspot.com/2015/09/over-425-members-now.html

 

The Truth About The “New” Drug For Periodic Paralysis: It Is Not New

http://livingwithperiodicparalysis.blogspot.com/2015/08/the-truth-about-new-drug-for-periodic.html

 

A New Drug For Periodic Paralysis? Helpful Or More Of The Same?

http://livingwithperiodicparalysis.blogspot.com/2015/08/a-new-drug-for-periodic-paralysis.html

 

Bill of Rights for Periodic Paralysis Patients

http://livingwithperiodicparalysis.blogspot.com/2015/07/normal-0-normal-0-billof-rights-for.html

 

Scandinavian Periodic Paralysis Support Group

http://livingwithperiodicparalysis.blogspot.com/2015/07/scandinavian-periodic-paralysis-support.html

 

Identify And Eliminate The Triggers Of Periodic Paralysis: Part Two

http://livingwithperiodicparalysis.blogspot.com/2015/06/identify-and-eliminate-triggers-of_24.html

 

Identify And Eliminate The Triggers Of Periodic Paralysis: Part One

http://livingwithperiodicparalysis.blogspot.com/2015/06/identify-and-eliminate-triggers-of.html

 

Trying To Balance My Life-Periodic Paralysis! Guest Blog Article from Julie Nielsen Cabitto

http://livingwithperiodicparalysis.blogspot.com/2015/06/trying-to-balance-my-life-periodic.html

 

Periodic Paralysis and Depression

http://livingwithperiodicparalysis.blogspot.com/2015/06/periodic-paralysis-and-depression.html

 

Over 400 Members!!!!!

http://livingwithperiodicparalysis.blogspot.com/2015/06/over-400-members.html

 

Doctors Not Being Held Accountable: The Periodic Paralysis Diagnosis By Guest Blogger Maureen McCutcheon

http://livingwithperiodicparalysis.blogspot.com/2015/04/doctors-not-being-held-accountable.html

 

375 Members!!!

http://livingwithperiodicparalysis.blogspot.com/2015/03/375-members.htm

 

A Poor 'Product' That is Being Called 'Medical Care': By Maureen McCutcheon

http://livingwithperiodicparalysis.blogspot.com/2015/03/a-poor-product-that-is-being-called.html

How To Get A Periodic Paralysis Diagnosis: “Hit Them Between The Eyes With The Facts”

http://livingwithperiodicparalysis.blogspot.com/2015/03/how-to-get-periodic-paralysis-diagnosis.html

 

Periodic Paralysis and "Post Traumatic Medical Stress Disorder" (PTMSD)

http://livingwithperiodicparalysis.blogspot.com/2015/03/periodic-paralysis-and-post-traumatic.html

 

Phishing Scam Using Our Book...Please Beware.....

http://livingwithperiodicparalysis.blogspot.com/2015/02/phishing-scam-using-our-bookplease.html

 

Periodic Paralysis and the EMG (CMAP)

http://livingwithperiodicparalysis.blogspot.com/2015/02/periodic-paralysis-and-emg-cmap.html

 

350 Members!!

http://livingwithperiodicparalysis.blogspot.com/2015/02/350-members.html

 

Happy Periodic Paralysis Awareness Day and Happy Fourth Anniversary for PPNI!!!!

http://livingwithperiodicparalysis.blogspot.com/2015/02/happy-periodic-paralysis-awareness-day.html

 

Compilation of Articles Written About Drugs and Periodic Paralysis

http://livingwithperiodicparalysis.blogspot.com/2015/02/compilation-of-articles-written-about.html

 

325 Members!!

http://livingwithperiodicparalysis.blogspot.com/2014/12/325-members.html

 

The Survey Results: Part One

http://livingwithperiodicparalysis.blogspot.com/2014/12/the-survey-results-part-one.html

 

The Connection Between Mitochondria and Autoimmune Disease in Periodic Paralysis

http://livingwithperiodicparalysis.blogspot.com/2014/12/the-connection-between-mitochondria-and.html

 

Genetic Mutation Overview

http://livingwithperiodicparalysis.blogspot.com/2014/12/genetic-mutation-overview.html

 

Our New Book!!! The Periodic Paralysis Guide And Workbook

http://livingwithperiodicparalysis.blogspot.com/2014/11/our-new-book-periodic-paralysis-guide.html

 

"Living with Periodic Paralysis: The Blog" Happy First Anniversary!!

http://livingwithperiodicparalysis.blogspot.com/2014/11/living-with-periodic-paralysis-blog.html

 

Prognosis

http://livingwithperiodicparalysis.blogspot.com/2014/11/prognosis.html

 

Bravelets Cause!!

http://livingwithperiodicparalysis.blogspot.com/2014/11/bravelets-cause.html

 

300 Members!!!

http://livingwithperiodicparalysis.blogspot.com/2014/10/300-members.html

 

Periodic Paralysis Awareness GoFundMe

http://livingwithperiodicparalysis.blogspot.com/2014/10/periodic-paralysis-awareness-gofundme.html

 

"This is Not an Acceptable Way to Make a Diagnosis" Guest Blogger

http://livingwithperiodicparalysis.blogspot.com/2014/10/this-is-not-acceptable-way-to-make.html

 

Conversion Disorder Again?? Really??

http://livingwithperiodicparalysis.blogspot.com/2014/10/conversion-disorder-again-really.html

 

Why haven't they done genetic testing?

http://livingwithperiodicparalysis.blogspot.com/2014/10/why-havent-they-done-genetic-testing.html

 

The Incorporation of Periodic Paralysis Network, Inc (PPNI)

http://livingwithperiodicparalysis.blogspot.com/2014/09/the-incorporation-of-periodic-paralysis.html

 

GeneticTesting Should Be For Any Mutation Close To The Relevant Gene

http://livingwithperiodicparalysis.blogspot.com/2014/09/genetictesting-should-be-for-any.html

 

"Why Do You Need A Diagnosis?"

http://livingwithperiodicparalysis.blogspot.com/2014/09/why-do-you-need-diagnosis.html

 

Someone who understands (Guest Writer Maureen)

http://livingwithperiodicparalysis.blogspot.com/2014/09/someone-who-understands.html

 

Pain and Periodic Paralysis

http://livingwithperiodicparalysis.blogspot.com/2014/09/pain-and-periodic-paralysis.html

 

275 Members!!

http://livingwithperiodicparalysis.blogspot.com/2014/09/275-members.html

 

Our Members Around the World!!

http://livingwithperiodicparalysis.blogspot.com/2014/07/our-members-around-world.html

 

All patients should be treated with dignity! Guest Blogger: Maria Pinzon

http://livingwithperiodicparalysis.blogspot.com/2014/07/all-patients-should-be-treated-with.html

 

250 Members!!!!

http://livingwithperiodicparalysis.blogspot.com/2014/07/250-members.html

 

Exercise Intolerance

http://livingwithperiodicparalysis.blogspot.com/2014/07/exercise-intolerance.html

 

Types of Potassium

http://livingwithperiodicparalysis.blogspot.com/2014/07/types-of-potassium.html

 

Open Letter To Doctors by Guest Writer, Carolanne

http://livingwithperiodicparalysis.blogspot.com/2014/07/open-letter-to-doctors-by-guest-writer.html

 

Beware Of "Off-Label" Drugs

http://livingwithperiodicparalysis.blogspot.com/2014/06/beware-of-off-label-drugs.html

 

"This Book Lead To My Genetic Diagnosis Of Anderson-Tawil Syndrome II": Book Review by Guest Blogger Tammy

http://livingwithperiodicparalysis.blogspot.com/2014/06/this-book-lead-to-my-genetic-diagnosis.html

 

Changing Lives Naturally

http://livingwithperiodicparalysis.blogspot.com/2014/06/changing-lives-naturaly.html

 

Paramyotonia Congenita: Another Form Of Periodic Paralysis

http://livingwithperiodicparalysis.blogspot.com/2014/05/paramyotonia-congenita-another-form-of.html

 

New Discoveries

http://livingwithperiodicparalysis.blogspot.com/2014/05/new-discoveries.html

 

200 Members!!

http://livingwithperiodicparalysis.blogspot.com/2014/05/200-members.html

 

A Reply to a ‘Conversion Disorder’ Diagnosis by Guest Blogger Maureen

http://livingwithperiodicparalysis.blogspot.com/2014/05/a-reply-to-conversion-disorder.html

 

The Challenges of Periodic Paralysis by Guest Writer

http://livingwithperiodicparalysis.blogspot.com/2014/05/the-challenges-of-pp-by-guest-writer.html

 

Plagiarism

http://livingwithperiodicparalysis.blogspot.com/2014/04/plagiarism.html

 

Periodic Paralysis vs Cancer

http://livingwithperiodicparalysis.blogspot.com/2014/04/periodic-paralysis-vs-cancer.html

 

Standard Healthy Eating Is Not Best For Individuals With PP

http://livingwithperiodicparalysis.blogspot.com/2014/04/standard-healthy-eating-is-not-best-for.html

 

The Periodic Paralysis Network

http://livingwithperiodicparalysis.blogspot.com/2014/04/the-periodic-paralysis-network.html

 

Periodic Paralysis Network Diagnosis Project Part Two

http://livingwithperiodicparalysis.blogspot.com/2014/04/periodic-paralysis-network-diagnosis_8.html

 

Periodic Paralysis Network Diagnosis Project

http://livingwithperiodicparalysis.blogspot.com/2014/04/periodic-paralysis-network-diagnosis.html

 

Our Diagnostic Rights

http://livingwithperiodicparalysis.blogspot.com/2014/03/our-diagnostic-rights.html

 

The Five Stages of Loss in Chronic Illness

http://livingwithperiodicparalysis.blogspot.com/2014/03/the-five-stages-of-loss-in-chronic.html

 

Clinical Diagnosis vs Genetic Diagnosis

http://livingwithperiodicparalysis.blogspot.com/2014/03/clinical-diagnosis-vs-genetic-diagnosis.html

 

Rare Disease Day!!!

http://livingwithperiodicparalysis.blogspot.com/2014/02/rare-disease-day.htm

 

Rhabdomyolysis

http://livingwithperiodicparalysis.blogspot.com/2014/02/rhabdomyolysis.html

 

Over 150 Members Now!!!

http://livingwithperiodicparalysis.blogspot.com/2014/02/over-150-members-now.html

 

Metabolic Acidosis and pH Balance

http://livingwithperiodicparalysis.blogspot.com/2014/02/metabolic-acidosis-and-ph-balance.html

 

Periodic Paralysis and Anesthesia

http://livingwithperiodicparalysis.blogspot.com/2014/02/periodic-paralysis-and-anesthesia.html

 

Some Forms of Periodic Paralysis are Worsened by Diamox

http://livingwithperiodicparalysis.blogspot.com/2014/02/some-forms-of-pp-worsened-by-diamox.html

 

No Tourniquet Please!!!

http://livingwithperiodicparalysis.blogspot.com/2014/02/no-tourniquet-please.html

 

Happy Anniversary to US!!!

http://livingwithperiodicparalysis.blogspot.com/2014/02/happy-anniversary-to-us.html

 

The Truth About Diagnosing and Treating Periodic Paralysis

http://livingwithperiodicparalysis.blogspot.com/2014/02/the-truth-about-diagnosing-and-treating.html

 

What is Normokalemic Periodic Paralysis?

http://livingwithperiodicparalysis.blogspot.com/2014/02/what-is-normokalemic-periodic-paralysis.html

 

My Story: How I Got My Diagnosis Of Periodic Paralysis

http://livingwithperiodicparalysis.blogspot.com/2014/02/my-story-how-i-got-my-diagnosis-of.html

 

What is Periodic Paralysis?

http://livingwithperiodicparalysis.blogspot.com/2014/02/what-is-periodic-paralysis.html

 

A Message To Our Non-English Speaking Members

http://livingwithperiodicparalysis.blogspot.com/2014/01/a-message-to-our-non-english-speaking.html

 

Dysautonomia and Periodic Paralysis

http://livingwithperiodicparalysis.blogspot.com/2014/01/dysautonomia.html

 

Isolated Diastolic Hypotension and High Pulse Pressure

http://livingwithperiodicparalysis.blogspot.com/2014/01/isolated-diastolic-hypotension-and-high.html

 

What is an Ion Channelopathy?

http://livingwithperiodicparalysis.blogspot.com/2014/01/what-is-ion-channelopathy.html

 

Permanent Muscle Weakness in Periodic Paralysis...Continued

http://livingwithperiodicparalysis.blogspot.com/2014/01/permanent-muscle-weakness-in-periodic_12.html

 

Permanent Muscle Weakness in Periodic Paralysis

http://livingwithperiodicparalysis.blogspot.com/2014/01/permanent-muscle-weakness-in-periodic.html

 

What is Hypokalemic Periodic Paralysis?

http://livingwithperiodicparalysis.blogspot.com/2014/01/what-is-hypokalemic-periodic-paralysis.html

 

The Effects Of Periodic Paralysis Cannot Be Minimized For Most Of Us

http://livingwithperiodicparalysis.blogspot.com/2014/01/the-effects-of-periodic-paralysis.html

 

Periodic Paralysis and New Years Resolutions January 1, 2014

http://livingwithperiodicparalysis.blogspot.com/2014/01/periodic-paralysis-and-new-years.html

 

Happy New Year!!!! December 31, 2013

http://livingwithperiodicparalysis.blogspot.com/2013/12/happy-new-year-december-31-2013.html

 

Monitoring Vital Signs For Individuals With Periodic Paralysis

http://livingwithperiodicparalysis.blogspot.com/2013/12/monitoring-vital-signs-for-individuals.html

 

Why People With Some Forms Of Periodic Paralysis Should Not Use Intravenous Therapy (IVs).

http://livingwithperiodicparalysis.blogspot.com/2013/12/why-people-with-some-forms-of-periodic.html

 

Why We Should NOT TAKE DRUGS: Idiosyncratic and Paradoxical Reactions To Drugs

http://livingwithperiodicparalysis.blogspot.com/2013/12/idiosyncratic-and-paradoxical-reactions.html

 

Finding a Doctor Who Cares

http://livingwithperiodicparalysis.blogspot.com/2013/12/finding-doctor-who-cares-december-19.html

 

Periodic Paralysis and Metabolic Acidosis

http://livingwithperiodicparalysis.blogspot.com/2013/12/periodic-paralysis-and-metabolic.html

 

What is Hyperkalemic Periodic Paralysis?

http://livingwithperiodicparalysis.blogspot.com/2013/12/what-is-hyperkalemic-periodic-paralysis.html

 

Hope For Individuals With Periodic Paralysis

http://livingwithperiodicparalysis.blogspot.com/2013/12/hope-for-individuals-with-periodic.html

 

Conversion Disorder vs Periodic Paralysis

http://livingwithperiodicparalysis.blogspot.com/2013/12/conversion-disorder-vs-periodic.html

 

What is Andersen-Tawil Syndrome?

http://livingwithperiodicparalysis.blogspot.com/2013/12/what-is-andersen-tawil-syndrome.html

 

What is Sotos Syndrome?

http://livingwithperiodicparalysis.blogspot.com/2013/12/what-is-sotos-syndrome-december-8-2013.html

 

How Many People in the World Have Periodic Paralysis?

http://livingwithperiodicparalysis.blogspot.com/2013/12/how-many-people-in-world-have-periodic.html

 

Avoiding the Pitfalls of the Emergency Room

http://livingwithperiodicparalysis.blogspot.com/2013/12/avoiding-pitfalls-of-emergency-room.html

 

Periodic Paralysis and the ER…The Narrative

http://livingwithperiodicparalysis.blogspot.com/2013/12/periodic-paralysis-and-erthe-narrative.html

 

When to Call For an Ambulance

http://livingwithperiodicparalysis.blogspot.com/2013/12/when-to-call-for-ambulance-december-3.htm

 

Triggers

http://livingwithperiodicparalysis.blogspot.com/2013/12/triggers-december-1-2013.html

 

Pharmaceuticals Are Not the Answer For Some Rare Diseases

http://livingwithperiodicparalysis.blogspot.com/2013/11/pharmaceuticals-are-not-answer-for-some.html

 

Periodic Paralysis and Balance

http://livingwithperiodicparalysis.blogspot.com/2013/11/periodic-paralysis-and-balance-november.html

 

Periodic Paralysis Diet

http://livingwithperiodicparalysis.blogspot.com/2013/11/periodic-paralysis-diet-november-25-2013.html

 

Periodic Paralysis and Iatrogenic Illness?

http://livingwithperiodicparalysis.blogspot.com/2013/11/periodic-paralysis-and-iatrogenic.html

 

Walking the Tightrope Using The Plan

http://livingwithperiodicparalysis.blogspot.com/2013/11/walking-tightrope-using-plan-november.html

 

My Power Wheelchair

http://livingwithperiodicparalysis.blogspot.com/2013/11/my-power-wheelchair-november-21-2013.html

 

The How and Why of our Book?? 'Living With Periodic Paralysis: The Mystery Unraveled'

http://livingwithperiodicparalysis.blogspot.com/2013/11/the-how-and-why-of-our-book-november-20.html

 

Emergency Instruction Chart

http://livingwithperiodicparalysis.blogspot.com/2013/11/emergency-instruction-chart-november-19.html

 

Episodes of Paralysis Continued

http://livingwithperiodicparalysis.blogspot.com/2013/11/episodes-of-paralysis-continued.html

 

Episodes of Paralysis

http://livingwithperiodicparalysis.blogspot.com/2013/11/episodes-of-paralysis-november-17-2013.html

 

Diagnosis Continued

http://livingwithperiodicparalysis.blogspot.com/2013/11/diagnosis-continued-november-16-2013.html

 

The Diagnosis

http://livingwithperiodicparalysis.blogspot.com/2013/11/the-diagnosis-november-15-2013.html

 

Potassium and Potassium Meters

http://livingwithperiodicparalysis.blogspot.com/2013/11/potassium-and-potassium-meters-november.html

 

What is Periodic Paralysis??

http://livingwithperiodicparalysis.blogspot.com/2013/11/what-is-periodic-paralysis-november-13.html

 

Welcome to the world of Periodic Paralysis!

http://livingwithperiodicparalysis.blogspot.com/2013/11/welcome-to-world-of-periodic-paralysis.html



Our message has not changed in the past five years. We still hope to bring awareness and understanding of Periodic Paralysis to the world.  We will continue to add new articles as the need arises or as new information becomes available.
Until later...
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