Hello All,
The "Periodic Paralysis World Awareness Day" Page has been created by the Periodic Paralysis Network to help bring awareness about this little known rare medical disorder to the world. We have chosen February 7 as "Periodic Paralysis World Awareness Day" because it is the day I finally received my diagnosis after more than 50 years!! What a better day to use in order to bring awareness about this disorder and to make sure that others do not have to wait over 50 years for a diagnosis and the help they need? Research indicates that it takes an average of 20 years to get a diagnosis for Periodic Paralysis in today's world. This has to stop!!! More awareness and education is needed around the world about this disabling and sometimes fatal disease.
Our "Periodic Paralysis World Awareness Day" theme this year is "What Is Periodic Paralysis?" We are starting our campaign with an informational poster. We will continue to share information, ideas and more from now through February 7, 2016, which is our third "Periodic Paralysis World Awareness Day" in order to bring awareness to this rare medical condition.
Please join us!!
Susan Q. Knittle-Hunter
Please join us!!
Susan Q. Knittle-Hunter
Managing Director
Periodic Paralysis NetworkThe Periodic Paralysis Network Forum
Periodic Paralysis NetworkThe Periodic Paralysis Network Forum
Website:
Email:
Blog:
http://livingwithperiodicparalysis.blogspot.com/
Support, Education and Advocacy Group:
https://www.facebook.com/groups/periodicparalysisnetworksupportgroup/
Books: "Living With Periodic Paralysis: The Mystery Unraveled" "The Periodic Paralysis Guide And Workbook: Be The Best You Can Be Naturally"
"A Bill Of Rights For Periodic Paralysis Patients"
Purchase through Amazon and our Website: http://www.periodicparalysisnetwork.com/books.htm
Support, Education and Advocacy Group:
https://www.facebook.com/groups/periodicparalysisnetworksupportgroup/
Books: "Living With Periodic Paralysis: The Mystery Unraveled" "The Periodic Paralysis Guide And Workbook: Be The Best You Can Be Naturally"
"A Bill Of Rights For Periodic Paralysis Patients"
Purchase through Amazon and our Website: http://www.periodicparalysisnetwork.com/books.htm
Book Discussion Group:
Genealogy Discussion Group:
https://www.facebook.com/groups/580168915344191/
Genetics Discussion and Research Group.
The PPN Learning Center and Workshop:
PPN Website Facebook Page:
PPN Author's Page:
GoFundMe: http://www.gofundme.com/ftnr50
Bravelets:https://www.bravelets.com/bravepage/alone-in-the-dark-periodic-paralysis
Video about Periodic Paralysis: /
Periodic Paralysis World Awareness Day Page:
Genealogy Discussion Group:
https://www.facebook.com/groups/580168915344191/
Genetics Discussion and Research Group.
The PPN Learning Center and Workshop:
PPN Website Facebook Page:
PPN Author's Page:
GoFundMe: http://www.gofundme.com/ftnr50
Bravelets:https://www.bravelets.com/bravepage/alone-in-the-dark-periodic-paralysis
Video about Periodic Paralysis: /
Periodic Paralysis World Awareness Day Page:
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