Our Latest Book: "A Bill Of Rights For Periodic Paralysis Patients" the first in our A.S.E.A.Series

The Periodic Paralysis Network is excited to introduce our latest book, "A Bill Of Rights For Periodic Paralysis Patients" the first in our ***A.S.E.A.Series!!!

It is an easy read and a great educational tool for anyone who wants to know more about, or better understand, the rare mineral metabolic disorder, Periodic Paralysis.

The members of the ‘Periodic Paralysis Network Support, Education and Advocacy Group’ inspired "A Bill of Rights For Periodic Paralysis Patients." The members, now over 425 worldwide, share daily their heart-breaking and frustrating experiences. They relate frightening symptoms, years of painful and costly testing, a lack of being believed, abuse by doctors, denial of diagnoses and denial of proper treatment. These courageous and very ill people are under-recognized, under-diagnosed, misdiagnosed, misunderstood and mistreated by the medical professionals with whom they must deal and depend upon for their care. Their general rights; diagnostic rights; the right to proper treatment in the laboratory, by doctors and in the ER; the right to research and awareness and issues related to insurance rights have been and are being violated in many cases. This needs to stop.

For these reasons a bill of rights for individuals with Periodic Paralysis has been created, by the PPN. The information used to outline, describe and explain these concepts and rights are referenced and can be found at the Periodic Paralysis Network, Inc. Website, Blog Articles, Discussion Groups and Books.

***This series, called "The Periodic Paralysis Network A.S.E.A. Series," is designed to bring awareness of Periodic Paralysis to the world; to provide support to individuals with all forms of Periodic Paralysis and their family members; to educate individuals about all aspects of Periodic Paralysis to include medical professionals and to provide advocacy for those with the condition and their family members and caregivers. The PPN was created and exists to provide Awareness, Support, Education and Advocacy to and for all individuals with Periodic Paralysis, their family members and caregivers as well as all medical professionals, thus the acronym A.S.E.A.

Table of Contents

    About A.S.E.A.      vi
    Preface    viii
    Acknowledgements      ix
    Introduction       x
    What is a Bill of Rights?     13
    The General Rights     29
    The Diagnosis of Periodic Paralysis     41
    Treatment in the Laboratory     55
    Treatment by Doctors     63
    Treatment in the ER and Hospital     75
    Research and Awareness     99
    Insurance    105
    Conclusion    109
    Periodic Paralysis Forum    110
    About the Authors    111

A Bill Of Rights For Periodic Paralysis Patients
Amazon:
https://www.amazon.com/Susan-Q-Knittle-Hunter/e/B00HVEBSSQ/ref=dp_byline_cont_pop_book_1

CreateSpace:
https://www.createspace.com/5705192