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Friday, November 21, 2014

Our New Book!!! The Periodic Paralysis Guide And Workbook

Hello All,

We are excited and proud to announce our new book "The Periodic Paralysis Guide And Workbook: Be The Best You Can Be Naturally" is now available in paperback on Create Space and Amazon.


                                                        
 
The Periodic Paralysis Guide And Workbook:
Be The Best You Can Be Naturally

 Susan Quentine Knittle-Hunter

&

Calvin Hunter

 

 Table Of Contents




Acknowledgments
 viii

Preface
  ix

Introduction
  xi

Section I: The Facts


Getting Started
  1
One
Periodic Paralysis: The Basic Facts
  5
Two
The Periodic Paralyses: More Detail
  9
Three
An Ion Channelopathy: A Mineral Metabolic Disorder
 17
Four
Possible Complications: The Most Common
 19
Five
More Complications: Understanding The Complexity
 35

Section II: The Plan

Six
The Plan: The Outline
 45
Seven
Educate Yourself: Discussion Groups, Websites, Internet and Books
 49
Eight
Describe Your Episodes: Paralysis Accompanying Symptoms
 53
Nine
Monitor Your Vitals: Tools For The Job
 59
Ten
Identify And Eliminate Triggers: Avoid-Chart-Journal-Monitor
 71
Eleven
Relieve Your Symptoms: Changing Lives Naturally
 87
Twelve
Find A Doctor Who Cares: Not Easy But Possible
109
Thirteen
Get A Diagnosis: Hit Them With The Facts
115
Fourteen
Get Proper Medical Treatment: Assemble And Direct The Team
127
Fifteen
Direct The Paramedics And EMT’s: No IV’s Please
131
Sixteen
Direct The ER And Hospital Staff: Avoid The Pitfalls
135
Seventeen
Prognosis: The Best You Can Be
139
Eighteen
The Conclusion: Hope
141

Section III: The Journal

Nineteen
The Personal Periodic Paralysis Journal: Put It Together
145

Index
191


Preface


A preface for a book is written to explain what the book is about, why the author wrote the book, why it is important, where the idea for the book originated, how it came to be and how long it took to write. With this in mind, I will begin by explaining that this book is about a very rare, hereditary, and debilitating mineral metabolic disorder, with which I have been diagnosed, called Periodic Paralysis (PP). It is the second book written specifically about this relatively unknown condition. My husband Calvin and I previously wrote, living with Periodic Paralysis: The Mystery Unraveled, based on our own experiences and research. In it we tell our story, provide information about Periodic Paralysis not found anywhere else, and deliver ideas about how to better manage symptoms and discuss the psychological and social aspects of living with the condition.

The idea for a second book came from the need, of a user-friendly workbook and guide to assist individuals with this condition to be the best they can be by using the natural and common sense methods as outlined in the first book. This is important because very little information exists about how to treat the symptoms of Periodic Paralysis, other than the use of off-label drugs, which can be harmful to many individuals or are not tolerated well. The idea for this book originated from our own experiences, study and experimentation and the need of others who suffer from this condition. This book actually took more than four years to compile and write.   

We know this need exists because Calvin and I interact daily with over 300 very ill individuals, from around the world, who are members in our Periodic Paralysis Network Support, Education and Advocacy Group and others who contact us by email through our PPN Website, our PPN Facebook Pages, our PPN Blog or through searching for us after reading our first book. These individuals, their families and caregivers, and several new members each week, need assistance and we spend our days providing support, education, advocacy, validation and hope in an otherwise hopeless world for them.

They are attempting to find the names of specialists who can help them and diagnose them and seeking a simple pill or medication to stop the paralysis and other cruel ‘quality of life stealing’ symptoms plaguing them daily. The truth is there are very few “specialists” or doctors in the world who know about or fully understand all aspects of the many forms of Periodic Paralysis. There is no simple pill or drug; no magic cure for Periodic Paralysis. Most doctors do not recognize Periodic Paralysis and genetic testing is nearly non-existent for most forms and therefore they will not diagnose their patients or will diagnose them with somatic disorders. However, when these individuals come to our forum, we are able to provide them with hope and methods to assist them to find a doctor who cares and to get a diagnosis based on their symptoms. We also provide methods to assist them to relieve their symptoms in natural ways. We help them to improve their lives with the information and methods we have learned and I practice everyday.

Through this new guide, workbook and journal, we have included all of these ideas and the tools to be successful. We want to empower individuals with Periodic Paralysis by providing a hands-on, user-friendly implement in one handbook with a series of plans made up life changing goals and objectives. These are expanded from the first book as well as the simple and easy to follow instructions to carry them out. The Periodic Paralysis Guide And Workbook: Be The Best You Can Be Naturally, offers HOPE to everyone with Periodic Paralysis, in the same manner as our book, living with Periodic Paralysis: The Mystery Unraveled.

In conclusion, we are aware that it is not an easy path in life for individuals with Periodic Paralysis. We know we must constantly balance on an ever-changing tightrope. We are not able to provide anyone who has Periodic Paralysis with a cure or a magic drug. We cannot diagnose anyone or suggest a specialist who can help. However, we do know that through this hands on and user-friendly guide and workbook, we can give others hope through the knowledge we share, the ideas we pass along in all areas of dealing with and managing their symptoms and with validation and support. We wrote this second book about Periodic Paralysis, to give hope to others who suffer with this condition and to guide them to be the best they can be naturally.


Amazon:
https://www.amazon.com/Susan-Q-Knittle-Hunter/e/B00HVEBSSQ/ref=dp_byline_cont_pop_book_1




CreateSpace:
https://www.createspace.com/4326356?ref=1147694&utm_id=6026










Until later...

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