tag:blogger.com,1999:blog-2152211800119076289.post2308652674908171368..comments2023-11-09T02:44:56.895-08:00Comments on Living with Periodic Paralysis: The Blog: What is Normokalemic Periodic Paralysis? Susan Q.Knittle-Hunterhttp://www.blogger.com/profile/14423032446507636527noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-2152211800119076289.post-35928733647375480252023-09-12T00:53:36.954-07:002023-09-12T00:53:36.954-07:00Can u help me with your experience please Can u help me with your experience please Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2152211800119076289.post-52713267102880136312018-01-30T09:47:29.519-08:002018-01-30T09:47:29.519-08:00Dez, I am searching for a Dr with Normokalemic Kno...Dez, I am searching for a Dr with Normokalemic Knowledge any ideas?<br />bebehttps://www.blogger.com/profile/13522368695090210968noreply@blogger.comtag:blogger.com,1999:blog-2152211800119076289.post-944375453069936342015-10-21T20:29:03.204-07:002015-10-21T20:29:03.204-07:00Hello Dez,
I understand your anger, frustration a...Hello Dez,<br /><br />I understand your anger, frustration and concern. I have lived it and continue to live it. I too had to give up my teaching carrier. I have concerns that you are on the medication....for most of us it makes us worse....we have discovered all natural ways to manage our symptoms. Please join us on our Support, Education and Advocacy Group at: https://www.facebook.com/groups/periodicparalysisnetworksupportgroup/ ...We have much to share. We are a very supportive group and most all of us all living your same story. Susan Q.Knittle-Hunterhttps://www.blogger.com/profile/14423032446507636527noreply@blogger.comtag:blogger.com,1999:blog-2152211800119076289.post-78965222586415383962015-10-21T11:20:50.113-07:002015-10-21T11:20:50.113-07:00I have been dealing with this for years and I am a...I have been dealing with this for years and I am angry with the medical doctors who lacked knowledge about my condition, now I am so weak-I fear I may never recover. If they just knew they could have maybe stopped it before this weakness took over. I pray no one ever goes through this again, I want to bring to account every Dr. who had the opportunity to help me and didn't. My life is heavily altered and my children are barely with a mother and my teaching career ended. My life diminished and I believe it could have been prevented and handled different if medication would have been tried. Though getting on the right track now I searched high and low for a Dr. who had knowledge and drove 2 1/2 hours and finally started medication but the weakness remains. Hopeful that the paralysis will slow down/stop. Desiree Mallickhttps://www.blogger.com/profile/18424621787136915842noreply@blogger.com