tag:blogger.com,1999:blog-2152211800119076289.post1307153723889406960..comments2023-11-09T02:44:56.895-08:00Comments on Living with Periodic Paralysis: The Blog: What is Periodic Paralysis?? Susan Q.Knittle-Hunterhttp://www.blogger.com/profile/14423032446507636527noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-2152211800119076289.post-67395778083790038882018-11-08T07:55:58.189-08:002018-11-08T07:55:58.189-08:00Hello Simone,
Please join us at the PPN Support Gr...Hello Simone,<br />Please join us at the PPN Support Group on Facebook. We have much information to share on how to get diagnosed and how to manage your symptoms in all natural ways.<br />https://www.facebook.com/groups/periodicparalysisnetworksupportgroup/<br /><br />Susan Q.Knittle-Hunterhttps://www.blogger.com/profile/14423032446507636527noreply@blogger.comtag:blogger.com,1999:blog-2152211800119076289.post-40310036699641839702018-11-07T04:34:48.103-08:002018-11-07T04:34:48.103-08:00Hello Susan, I have just stumbled onto your page a...Hello Susan, I have just stumbled onto your page as I was looking up eposodic paralysis as I have had full and partial parylysis for over ten years on both sides of the body, oftentimes with my skin appearing blueish, I can experience pains in the arms and legs, especially at night, exhaustion after episodes and the eposides can be triggerred by tiredness, cold, stress or viruses and my blood pressure is low after an episode. My neurology scan is clear and my nurologist has advised me that it is a headache or migraine, despite saying that headaches and migraines can only cause one side of the body to be parylised and that we will discount this. I can have an arm, ususally a hand and arm, on either side occur to the full body including inabilty to swallow or speak. My father also had simular symptoms to a milder degree. Could you please advise me what tests I would require to test for PPS as I am desperate to find what is causing this and feel that no doctor will give me an adequeate answer and it is impacting my quality of life work and performance at this present stage. I am so glad to have found your page and have never written to a blog before. Thankyou for your time and efforts. <br /><br />Warm Regards,<br /><br />Simone CAnonymoushttps://www.blogger.com/profile/17016032119151013176noreply@blogger.com